As many of you will know, being a parent is hard work! Being a special need parent, that’s even harder! Our day can begin as early as 430am and sometimes end as late as 10pm. It can be a thankless task, as our children can often take things we do for them for granted, although it can have its moments.
The weekend just past was the weekend of Daniel’s birthday. His actual birthday was on Friday, so of course he was on a high the whole day. He was ecstatic at all the Star Wars toys and DVDs he landed with. It was lovely to see him so happy, that we knew it was all worthwhile. The 36 hours from Saturday lunchtime, well, that was a day’s work and then some!
First of all, the new bed we had ordered for Daniel arrived on Thursday, so Saturday afternoon was spent dismantling the old one with Daniel and Matthew’s help. Of course, all of the heavy work was left to me! I didn’t mind that though – at least the boys knew when something was too much for them, and it helped keep them safe. We were hard at it for the better part of two hours, because it needs breaks for bouncing on the trampoline. Next up was taking all the cardboard we’d piled in the car round to the recycling centre to make room for the dismantled bed, old dishwasher and assorted junk so we could take that round to the household waste/recycling centre in Tullos. Of course, that mean lugging the dismantled bed downstairs and into the car. The weekend was involving just a little but too much hard work!
It continued with Star Wars day on Saturday. I’d promised Daniel (and Matthew) that we’d watch at least a couple of the movies to mark the big day. Their Granny (Jane’s mum) doesn’t like Star Wars at all, and will often be incredibly negative about it in front of Daniel. Its something he enjoys (much to my delight) and he shouldn’t be so discouraged from following one of his passions. Well, after a few minutes of Star Wars, Granny disappeared upstairs, and we were left in peace to enjoy Star Wars. It was like being re-introduced to an old friend. We usually watch Empire Strikes Back, but as it was Star Wars day, we kicked off with the original movie. I’d almost forgotten how good and enjoyable it is. The scene where it cuts away from the impending torture of Leia, using the clanging shut of her cell door and the guard’s footsteps – superb. But that’s well beaten by Han Solo flying in out of the sun to save Luke’s neck at the last second. I think we almost cheered! Granny re-appeared by about 830pm, but by then, it was onto Empire Strikes Back! I think she gave up after that! The evening was a real boys get together. Matthew, Daniel & I lounging on the sofa, drinks, some snacks, and Star Wars on the TV. This was work? 11pm, and it was bedtime for the boys, which left Jane & I with Star Trek on Film 4!
The Sunday though, we that was hard work! Mandatory trampoline bouncing invariably gets a Sunday underway – after the boys have me make them soft boiled eggs! We’ve been getting eggs direct from a local farm lately, and they are lovely. Even though I say so myself, they were beautifully cooked! Yolks only just set, they looked great. That and trampoline, it was time to get going on putting Daniel’s bed together – after the task of getting all the million pieces that go to putting it together upstairs first of course! That done, work progressed fairly well, It was a two person job, but I decided that the boys and I could pull it off. We’d gotten about half way when it was time for a break for more work – Daniel’s birthday party at the soft play room of a local restaurant. They were brilliant and Daniel and chums had a great time (http://jas2jar.wordpress.com/2013/05/06/party-time/) Its harder than you think when you’re supervising about a dozen or so kids! The staff were great though, and Daniel loved it.
Back home then, but no rest for the weary! Back to Daniel’s semi-constructed bed. Its harder work than you think holding pieces in places while you try to use a screwdriver that should be held in a third hand! Push, pull, lift, hold, screw in, thump, unscrew, thump again (swear words optional) then screw in once again. Still, by 730, it was all done. Daniel helped me finish it off, so he had a big hand in it. The mattress went on, and he could try it out. He was thrilled. It had been a long 30 hours or so, full of hard work, but all of the things were more-or-less just another day’s work at home. We do these things, but sometimes we get thanks for it, and its worth it all. Daniel – unprompted – drew me a card with hearts & kisses all over it with the message inside reading, “To Daddy, I love you from Daniel.” Yes, it can be hard work, but its all worth it.